National ALS Registry
September 5, 2025 |
National ALS Registry is a Congressionally mandated program to better understand ALS burden among US adults by collecting data such as demographics, environmental risk factors, and family history of ALS. The Registry supports ALS research community by providing scientists access to ALS biospecimen and tissues through its National ALS Biorepository. Together with the patient community and research organizations, the Registry joins fight to find cause and cure for ALS.